Guidelines Development Group
The GDG will follow the GRADE approach in defining the healthcare question of interest (population of interest, interventions to be compared and patient-relevant outcomes- PICO), synthesizing the evidence and developing the recommendations for the Guidelines. This will be carried out within virtual working environments and in meetings organised every three months. The initial draft documents and the final versions before publication are subject of open calls for feedback launched online.
The members are also invited to contribute to the other ECIBC objectives, the Digital Mammography Training Template and the European Guidelines Platform covering all processes of care (from screening to end-of-life care).
An external contractor, CCIb –Iberoamerican Cochrane Centre, supports the GDG for their tasks from literature review to drafting of recommendations.
Members and external experts
Susan Knox is a two time breast cancer survivor and has been Executive Director of Europa Donna since 1999. She is responsible for all on-going European advocacy initiatives in the areas of information, education and lobbying including Pan European advocacy conferences, meetings and information sessions at the European Parliament and European Commission, European Breast Cancer Advocacy Training Courses, publications and websites. In 2008 she launched ED’s first prevention initiative- BREAST HEALTH DAY, which takes place annually on 15 October.
In addition, Susan represents ED on numerous other projects: BIG Scientific Committee, MINDACT and AURORA Committees, European Commission Expert Group on Cancer Control, the ECIBC project, and European Breast Cancer Conferences (EBCC). She is a speaker on patient advocacy at various international conferences and courses and has written widely on the subject. In 2009 she was also named advocacy editor of the scientific journal "The Breast".
Prior to joining Europa Donna, Susan held various managerial positions in both the corporate and non profit sectors working for Citibank and a non-profit long-term care facility for the aged.
Susan holds a B.A. degree from Smith College and an M.A. degree from Columbia University.